Join us Tuesday, October 29, at noon Eastern for an important webinar, New Findings on Inequities in Rare Diseases: How They Impact Research and Clinical Trials Processes.” This session will be presented by Jenifer Ngo Waldrop, Executive Director of the Rare Disease Diversity Coalition at Black Women’s Health Imperative.
In this webinar, Jenifer will explore findings from a recent national survey, Inequities in the Rare Disease Community: The Voices of Diverse Patients and Caregivers, which gathered insights from over 2,800 participants. The research sheds light on the critical barriers underrepresented rare disease patients face, from accessing essential healthcare to navigating clinical trials.
Key takeaway: 50% of respondents reported feeling overwhelmed by the demands of managing care or caregiving, underscoring the emotional and logistical strain on families and individuals.
Don’t miss this chance to learn more about these vital issues and how they impact the rare disease landscape.
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